Open to Hope
She has devoted her time speaking to the medical community at both Cedars and UCLA about her experience with her daughter in the hospital. Stacy attended three IPPC (Initiative for Pediatric Palliative Care) conferences as a parent advocate and spoke to ELNEC (End Of Life Nursing Education Consortium) nurses to help better improve the environment in hospitals for families that need support.
She is on the board of the Children’s Hospice Of America Foundation (CHOAF) that helps raise awareness and funds for Palliative Care and Children’s Hospice around the country. Stacy and her husband have been guests on Open to Hope, an online resource for grief. She is also a parent representative on the hospice and palliative care board of the AAP (American Academy of Pediatrics). She continues to support families whose child has been diagnosed with a terminal illness or has died.
Grief As a Second Language is her first published book.